Refer a patient:We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation…

The International Congress of Porphyrins and Porphyrias took place on September 21-25, 2024 in Pamplona, Spain, bringing together clinicians, researchers, scholars, patients and their families for three days networking and…

Dear all Ipnet members, It is a great pleasure again to publish the new issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her team for all this…

Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the first issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her co-editors for all…

Dear colleagues and friends, We are very happy to inform you that the paper “Key terms and definitions in acute porphyrias: Results of an international Delphi consensus led by the…