Refer a patient:
We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation of results and management.
Please complete this webform. When we receive the form, we will contact you to arrange a consultation by email or video call.
We are unable to accept referrals directly from patients. If you are a patient, please share the information above with your doctor.
Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the December 2025 issue of the Ipnet Newsletter. Enjoy your reading and feel free to distribute !
The International Congress of Porphyrins and Porphyrias took place on September 21-25, 2024 in Pamplona, Spain, bringing together clinicians, researchers, scholars, patients and their families for three days networking and
Dear all Ipnet members, It is a great pleasure again to publish the new issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her team for all this
An international network of experts working together to improve healthcare services for porphyria patients
Postal adress
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Kaiser-Josef-Straße 9
6020 Innsbruck, Austria
Registered adress
NAPOS, Department of Medical Biochemistry and Pharmacology (MBF)
Haukeland Universitetssykehus, P.O. Box 1400
5021 Bergen, Norway
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