Help for Clinicians

Refer a patient

We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation of results and management.

Please complete this webform or email us on porphyriahelp@ipnet.org. We will reply within 1 week and can arrange a consultation by email or video call.

We are unable to accept referrals directly from patients. If you are a patient, please share the information above with your doctor.

Penelope Stein
Porphyria Clinicians Help Groupp