News

Message from the President Dear colleagues and friends, Over the past few months, the Ipnet Board has been working intensively on Ipnet’s new strategic plan for the coming years. As

Dear all Ipnet members, The IPNET paper Guidelines for the management of acute porphyria: recommendations from the International Porphyria Network has now been published in Lancet Haematology. It can be accessed free of charge for 50

Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the December 2025 issue of the Ipnet Newsletter. Enjoy your reading and feel free to distribute !

Refer a patient:We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation

The International Congress of Porphyrins and Porphyrias took place on September 21-25, 2024 in Pamplona, Spain, bringing together clinicians, researchers, scholars, patients and their families for three days networking and

Dear all Ipnet members, It is a great pleasure again to publish the new issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her team for all this

Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the first issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her co-editors for all

Dear colleagues and friends, We are very happy to inform you that the paper “Key terms and definitions in acute porphyrias: Results of an international Delphi consensus led by the