Dear all Ipnet members,
It is a great pleasure for Ipnet to circulate the first issue of the Ipnet Newsletter.
A warm thank you to Nica Cappellini and her co-editors for all their work.
Enjoy the reading and please feel free to distribute it broadly.
Best regards from
Sverre Sandberg
Ipnet president
Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the December 2025 issue of the Ipnet Newsletter. Enjoy your reading and feel free to distribute !
Refer a patient:We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation
The International Congress of Porphyrins and Porphyrias took place on September 21-25, 2024 in Pamplona, Spain, bringing together clinicians, researchers, scholars, patients and their families for three days networking and
An international network of experts working together to improve healthcare services for porphyria patients
Postal adress
c/o studio12 gmbh
Kaiser-Josef-Straße 9
6020 Innsbruck, Austria
Registered adress
NAPOS, Department of Medical Biochemistry and Pharmacology (MBF)
Haukeland Universitetssykehus, P.O. Box 1400
5021 Bergen, Norway
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