Dear all Ipnet members,
It is a great pleasure for Ipnet to circulate the first issue of the Ipnet Newsletter.
A warm thank you to Nica Cappellini and her co-editors for all their work.
Enjoy the reading and please feel free to distribute it broadly.
Best regards from
Sverre Sandberg
Ipnet president
Dear all Ipnet members, The IPNET paper Guidelines for the management of acute porphyria: recommendations from the International Porphyria Network has now been published in Lancet Haematology. It can be accessed free of charge for 50
Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the December 2025 issue of the Ipnet Newsletter. Enjoy your reading and feel free to distribute !
Refer a patient:We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation
The ICPP originally planned for September 2026 has been postponed due to the recent conflict in the Middle East. It will now take place from 14-17 March 2027. The conference is expected to be held in Istanbul but a final decision on the location will be confirmed in early September. All submission and registration deadlines will be extended in line with the new dates. If you have already registered for ICPP2026, please contact the organisers directly on icpp2026@bumeranggroup.com.