The International Congress of Porphyrins and Porphyrias took place on September 21-25, 2024 in Pamplona, Spain, bringing together clinicians, researchers, scholars, patients and their families for three days networking and learning about the latest research in the porphyria field.
You can find more information on the ICPP 2024 website: http://icpp2024.viajesoasis.com.
Image: Olgabraj, CC BY-SA 4.0 https://creativecommons.org/licenses/by-sa/4.0, via Wikimedia Commons
Dear all Ipnet members, It is a great pleasure for Ipnet to circulate the December 2025 issue of the Ipnet Newsletter. Enjoy your reading and feel free to distribute !
Refer a patient:We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation
Dear all Ipnet members, It is a great pleasure again to publish the new issue of the Ipnet Newsletter.A warm thank you to Nica Cappellini and her team for all this
An international network of experts working together to improve healthcare services for porphyria patients
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