Ipnet Webinars
Webinar Series 2021
The Porphyrias – introduction for non experts
In these webinars, you will learn when to suspect, how to diagnose and how to treat the porphyrias with the support of case histories.
The webinars are aimed at clinicians and specialists in laboratory medicine who are not experts in porphyria.
Contents
1. Diagnosing and managing the acute porphyrias – the basics
Thursday 25 March 2021
2. How to set up a specialist laboratory for porphyria diagnosis
Thursday 15 April 2021
3. Porphyria cutanea tarda – the basics
Thursday 6 May 2021
- PCT additional questions and answers: As Pr. Sverre Sandberg indicates at the end of this video, additional questions were answered offline by specialists, and can be consulted in a separate document, following this link.
4. Laboratory diagnosis of porphyrias for non-specialist laboratories
Thursday 16 September 2021
Webinar Series 2022
The Porphyrias – advanced diagnosing and management
In these webinars, you will learn more about diagnosing, management and treatment options for complex cases of porphyria.
The webinars are aimed at clinicians and specialists in laboratory medicine who are regularly, or think they in the future will be active, in diagnosing and treating patients with porphyria.
Contents
1. Management of severe acute porphyria
Thursday 20 January 2022 – Prof Sverre Sandberg (Ipnet President), Dr Eliane Sardh (Sweden), Dr Laurent Gouya (France), Dr Antoine Poli (Franc
2. How to set up a specialist laboratory for porphyria diagnosis
Thursday 3 February 2022 – Prof Sverre Sandberg (Ipnet President), Dr Aasne K Aarsand (Norway), Dr Caroline Schmitt (France), Dr Jordi To Figueras (Spain), Dr Sharon Whatley (Wales)
3. Management of severe erythropoietic protoporphyria (EPP)
Thursday 17 March 2022 – Prof Sverre Sandberg (Ipnet President), Dr Jasmin Barman (Switzerland), Dr Janneke Langendonk (The Netherlands), Dr Staffan Wahlin (Sweden)
